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Author Topic: Compassionate Allowances to speed up the Disability Benefits Process  (Read 3025 times)

Trajector Media

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I have provided a link to the information page on Social Security's Website regarding Compassionate Allowances. 

Basically compassionate allowances are defined by Social Security as a way to identify people that qualify for Disability based on the listing of impairments they use.  They also feel that these impairments would be easily proven with a small amount of easily proven medical data.

At this time, they have 50 conditions that fall under this "Allowance" but plan to add to this list.  They are listed on the page I linked below. 

Hopefully in time this list will increase and it can cut the wait time down for alot of people that are suffering and struggling financially to get by. 

Here is the link: http://www.socialsecurity.gov/compassionateallowances/
I speak from experience not expertise.

Raven2010

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Re: Compassionate Allowances to speed up the Disability Benefits Process
« Reply #1 on: February 06, 2010, 09:20:04 pm »
Do you have any idea how diagnoses get added to this list?  I see Public Hearings were held, but what prompts hearings?  Is there someone to contact?

Mark

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Re: Compassionate Allowances to speed up the Disability Benefits Process
« Reply #2 on: February 07, 2010, 08:04:49 pm »
The hearings are held by Michael J. Astrue, Commissioner of Social Security. 
I know it says he spoke to experts and held public hearings and plans to continue to add to the list.
He answers directly to President Obama so contacting him directly seems a mute point.
Though I suppose you could if you wanted to.
But being as high up as he is it would seem tough.
I think this process will happen on it's own although if certain groups are loud enough they may in fact get heard.
That is my feeling on the matter.

Doc76013

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Re: Compassionate Allowances to speed up the Disability Benefits Process
« Reply #3 on: February 11, 2010, 06:03:08 pm »
This is pure guess work on my part, however I do not see a category for any impairment other than what would seem the absolute most serious. My heart goes out to any human that would contract such heinous diseases. During my years I have seen many impairments that would follow me home at night. I hope that none of this group has any thing close to or has such a tragedy.  To address Raven 2010, I would speculate that the list would be of a continuation of what is now, in other words the worst of the worst.

Doc

Raven2010

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Re: Compassionate Allowances to speed up the Disability Benefits Process
« Reply #4 on: February 11, 2010, 10:47:13 pm »
This is pure guess work on my part, however I do not see a category for any impairment other than what would seem the absolute most serious. My heart goes out to any human that would contract such heinous diseases. During my years I have seen many impairments that would follow me home at night. I hope that none of this group has any thing close to or has such a tragedy.  To address Raven 2010, I would speculate that the list would be of a continuation of what is now, in other words the worst of the worst.

Doc

I saw that Leigh's Disease was added, which is one of the many identified "subtypes" of Mitochondrial Disease.  Mito Disease is what I have, although my neurologist hasn't yet identified any subtype.  But I don't personally feel I match Leigh's Disease criteria, so it is good I'm not among the worst of the worst.  I don't even have a prognosis yet because Mito is so unpredictible.  So other than "progressive" and has the potential to result in early death I don't have much to go on at this point.  Not that very sick/dying people shouldn't be a priorty, but I wasn't clear on the criteria for compassionate care and how it's determined.     

Trajector Media

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BREAKING NEWS: Social Security expands compassionate allowances
« Reply #5 on: February 12, 2010, 03:51:06 pm »
There are 38 new Compassionate Allowance Conditions effective March 1, 2010.  They are as follows:

Alstrom Syndrome
Amegakaryocytic Thrombocytopenia
Ataxia Spinocerebellar
Ataxia Telangiectasia
Batten Disease
Bilateral Retinoblastoma
Cri du Chat Syndrome
Degos Disease
Early-Onset Alzheimer's Disease
Edwards Syndrome
Fibrodysplasia Ossificans Progressiva
Fukuyama Congenital Muscular Dystrophy
Glutaric Acidemia Type II
Hemophagocytic Lymphohistiocytosis (HLH), Familial Type
Hurler Syndrome, Type IH
Hunter Syndrome, Type II
Idiopathic Pulmonary Fibrosis
Junctional Epidermolysis Bullosa, Lethal Type
Late Infantile Neuronal Ceroid Lipofuscinoses
Leigh's Disease
Maple Syrup Urine Disease
Merosin Deficient Congenital Muscular Dystrophy
Mixed Dementia
Mucosal Malignant Melanoma
Neonatal Adrenoleukodystrophy
Neuronal Ceroid Lipofuscinoses, Infantile Type
Niemann-Pick Type C
Patau Syndrome
Primary Progressive Aphasia
Progressive Multifocal Leukoencephalopathy
Sanfilippo Syndrome
Subacute Sclerosis Panencephalitis
Tay Sachs Disease
Thanatophoric Dysplasia, Type 1
Ullrich Congenital Muscular Dystrophy
Walker Warburg Syndrome
Wolman Disease
Zellweger Syndrome

The original 50 compassionate allowance maladies are:

Acute Leukemia
Adrenal Cancer - with distant metastases or inoperable, unresectable or recurrent
Alexander Disease (ALX) - Neonatal and Infantile
Amyotrophic Lateral Sclerosis (ALS)
Anaplastic Adrenal Cancer
Astrocytoma
Bladder Cancer - with distant metastases or inoperable or unresectable
Bone Cancer - with distant metastases or inoperable or unresectable
Breast Cancer - with distant metastases or inoperable or unresectable
Canavan Disease (CD)
Cerebro Oculo Facio Skeletal (COFS) Syndrome
Chronic Myelogenous Leukemia (CML) - Blast Phase
Creutzfeldt-Jakob Disease (CJD) - Adult
Ependymoblastoma (Child Brain Tumor)
Esophageal Cancer
Farber's Disease (FD) - Infantile
Friedreichs Ataxia (FRDA)
Frontotemporal Dementia (FTD), Picks Disease -Type A - Adult
Gallbladder Cancer
Gaucher Disease (GD) - Type 2
Glioblastoma Multiforme (Brain Tumor)
Head and Neck Cancers - with distant metastasis or inoperable or uresectable
Infantile Neuroaxonal Dystrophy (INAD)
Inflammatory Breast Cancer (IBC)
Kidney Cancer - inoperable or unresectable
Krabbe Disease (KD) - Infantile
Large Intestine Cancer - with distant metastasis or inoperable, unresectable or recurrent
Lesch-Nyhan Syndrome (LNS)
Liver Cancer
Mantle Cell Lymphoma (MCL)
Metachromatic Leukodystrophy (MLD) - Late Infantile
Niemann-Pick Disease (NPD) - Type A
Non-Small Cell Lung Cancer - with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent
Ornithine Transcarbamylase (OTC) Deficiency
Osteogenesis Imperfecta (OI) - Type II
Ovarian Cancer - with distant metastases or inoperable or unresectable
Pancreatic Cancer
Peritoneal Mesothelioma
Pleural Mesothelioma
Pompe Disease - Infantile
Rett (RTT) Syndrome
Salivary Tumors
Sandhoff Disease
Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)
Small Cell Lung Cancer
Small Intestine Cancer - with distant metastases or inoperable, unresectable or recurrent
Spinal Muscular Atrophy (SMA) - Types 0 And 1
Stomach Cancer - with distant metastases or inoperable, unresectable or recurrent
Thyroid Cancer
Ureter Cancer - with distant metastases or inoperable, unresectable or recurrent

Link: http://www.socialsecurity.gov/compassionateallowances/
I speak from experience not expertise.