Questions about how to use the forum?

Visit our new Frequently Asked Questions (FAQs) section.

Welcome, Guest. Please login or register.
Did you miss your activation email?

September 29, 2022, 01:15:06 am

Login with username, password and session length

Recent

Members
Stats
  • Total Posts: 246146
  • Total Topics: 24580
  • Online Today: 172
  • Online Ever: 1127
  • (January 16, 2020, 04:17:02 pm)
Users Online
Users: 0
Guests: 77
Total: 77

You are no longer alone ...

Author Topic: Filing for DAC soon in few months when we retire  (Read 3828 times)

AmericanBulldog

  • ~ Copper ~
  • *
  • Posts: 8
  • People helped 0
Filing for DAC soon in few months when we retire
« on: July 13, 2022, 05:06:25 pm »
Hello!  I am new here and have been researching the forums.  I've noticed there is much emphasis on medical evidence and treatment noted in medical files.  I am the mom/caregiver for our daughter, 33 years old currently receiving SSI since 19 years old.  My husband will be applying for his social security retirement at end of this year along with myself as his spouse.  We did not know but were told our daughter's SSI would stop and we would have to apply for SSDI DAC benefit for her.  Our daughter is severely autistic, nonverbal and requires 24 X 7 care.  She needs help with eating, bathing, toileting (wears adult pullups), getting dressed--all of the just basic and hard things.  There is no medical treatment/medication for this that she receives, no psychologist either.  Our daughter was born this way.  She does receive a good yearly physical from her PCP along with labwork yearly and she does go to her PCP if she is ill, but as far as medical/psychological/medication treatment for her severe autism--no treatment.  Her medical file with her PCP lists "Autistic" but she is in very good health and is "mobile" as far as walking but she definitely is very low functioning.  Is this going to be difficult?  If a state investigator wants to see, can they come to your home and observe? 

Just Me

  • Administrator
  • ~ Platinum ~
  • ****
  • Posts: 14234
  • People helped 1051
  • Nice Administrator
Re: Filing for DAC soon in few months when we retire
« Reply #1 on: July 13, 2022, 09:04:07 pm »
There should not be a problem. SSA does not send investigations to homes to verify disabilities. If SSA needs more information than is in your daughters medical records from her PCP. SSA will send her to one of their doctors for an exam. Just so you know, you have no choice about applying for DAC if you want her to continue to receive benefits.
Nerve damage in upper and lower extremities. Degenerative Disc Disease, RA.

Hope the size of a mustard seed can produce Faith that can move mountains.

AmericanBulldog

  • ~ Copper ~
  • *
  • Posts: 8
  • People helped 0
Re: Filing for DAC soon in few months when we retire
« Reply #2 on: July 14, 2022, 05:57:13 am »
Hello Just me and thank you for your reply!  I guess they can not force you to apply for DAC when the parents apply for their social security retirement??  I understand her SSI benefit will end when we begin retirement.  I guess we can postpone the applying for DAC a bit, if we want to????  Our daughter is on the largest state Medicaid disability waiver where we live.  It's sat mostly unused for the last 10 or so years that we've had it, with very minimum use of respite services over those years.  No respite now with covid.  Daughter was on a waiting list for 13 years for this waiver.  She DOES have a case manager who helps with the waiver etc.  The only other thing I was thinking, is to have her case manager for this waiver write a letter that I can send SSA, IF we do decide to try for the DAC benefit when we apply for our social security retirement.  The case manager knows our daughter, as we have meetings every 3 months regarding this waiver.  We just don't want "difficult" as we've been through so many hard things over the past 30 years, as you can imagine. 

Helper

  • Global Moderator
  • ~ Platinum ~
  • ****
  • Posts: 4535
  • People helped 585
Re: Filing for DAC soon in few months when we retire
« Reply #3 on: July 14, 2022, 06:52:43 am »
They cannot force you to apply for the DAC  - other than stopping the SSI.

I would get a copy of whatever notes her caseworker makes every 3 months and submit them with the DAC application.  My guess is they have some kind of documentation of her functioning to qualify her for caregivers (when it is not Covid) etc that SSA can use for the DAC benefits.

Plus, she was already on SSI - so they have previous documentation that she was disabled.

Yes, applying for DAC benefits is yet another hoop in a long line of hoops you have jumped through over the years - but it doesn't sound like your daughter will have difficulty qualifying.

She can keep the Medicaid when she goes on DAC (as a DAC recipient who loses SSI due to the amount of her DAC benefits).  And she will get Medicare as well.

If her DAC benefits are not higher than she would get on SSI, then she would still get partial SSI but end up with an extra $20/month. And when a parent passes away, her DAC benefits woukd increase (without a new application) because she can receive 75% of a deceased parent's benefit and only 50% of a living parent's benefit.
« Last Edit: July 14, 2022, 06:56:12 am by Helper »
Moderator

AmericanBulldog

  • ~ Copper ~
  • *
  • Posts: 8
  • People helped 0
Re: Filing for DAC soon in few months when we retire
« Reply #4 on: July 14, 2022, 07:51:54 am »
Thanks Helper!  Yes, if we go through with it, hopefully the case worker can help us.  Not much in her medical file at the PCP except for "autistic".  That can mean a lot of things!!  And some people when they hear/read that word "autistic" think of people working as a bagger in some store somewhere--this is not our daughter at all.  Some people do not realize there are people that absolutely can not function in society due to their severe autism. 

The DAC benefits would be much higher than her SSI now, which she does receive the full allowance of SSI. 

Still thinking over what we should do, but I will update when we know more.  I may have more questions too.  Thank you!

Helper

  • Global Moderator
  • ~ Platinum ~
  • ****
  • Posts: 4535
  • People helped 585
Re: Filing for DAC soon in few months when we retire
« Reply #5 on: July 15, 2022, 06:17:19 am »
One reason to file for it now is so she has financial support after you guys are no longer able to care for her.  More money just gives more options for care.
Moderator

AmericanBulldog

  • ~ Copper ~
  • *
  • Posts: 8
  • People helped 0
Re: Filing for DAC soon in few months when we retire
« Reply #6 on: July 15, 2022, 07:32:59 am »
We are leaning with applying I think, when we apply for our SS retirement.  She has a physical coming up in October.  I think I will ask her PCP how much charting is there in Janey's file regarding her function and capabilites as we are going to apply for our retirement at end of year, daughter will lose her SSI and we can apply for SSDI for her.  Hopefully, she will be willing to put more into Janey's chart there instead if just the word "autistic".  Hopefully, it will be enough so we do not get requested to go to specialists appointments such as IQ testing and all of that kind of stuff.  I know her case manager said she is willing to send anything we need, so that is good.  It would be so much simplier if they would come to our home and just observe for a little bit if they don't believe there is a problem.  I have another place I can ask to send info too that has to do with the disability waiver.  I just hope it's enough!  Reading thru these posts on here, it's heartbreaking for what they put people thru.  That's what I am trying to avoid, is "difficult".  We will just have to see what happens with the application, that's all we can do. 

Just Me

  • Administrator
  • ~ Platinum ~
  • ****
  • Posts: 14234
  • People helped 1051
  • Nice Administrator
Re: Filing for DAC soon in few months when we retire
« Reply #7 on: July 15, 2022, 03:54:12 pm »
Please keep us posted. I'm praying everything goes smoothly.
Nerve damage in upper and lower extremities. Degenerative Disc Disease, RA.

Hope the size of a mustard seed can produce Faith that can move mountains.

AmericanBulldog

  • ~ Copper ~
  • *
  • Posts: 8
  • People helped 0
Re: Filing for DAC soon in few months when we retire
« Reply #8 on: July 15, 2022, 06:39:04 pm »
Thanks Just Me! Will update when we know more and who knows I may have more questions!  Thank you!!

Just Me

  • Administrator
  • ~ Platinum ~
  • ****
  • Posts: 14234
  • People helped 1051
  • Nice Administrator
Re: Filing for DAC soon in few months when we retire
« Reply #9 on: July 16, 2022, 01:29:41 pm »
I have a younger brother with downs syndrome. He received SSI until my parents retired and he received DAC.
Nerve damage in upper and lower extremities. Degenerative Disc Disease, RA.

Hope the size of a mustard seed can produce Faith that can move mountains.

AmericanBulldog

  • ~ Copper ~
  • *
  • Posts: 8
  • People helped 0
Re: Filing for DAC soon in few months when we retire
« Reply #10 on: July 16, 2022, 04:27:37 pm »
Hello Just Me!  Was his switch easy or did he have to go through the whole application process again??  How long did it take?  Did he have to go from specialist to specialist to get evaluated?  I've read that is what we will have to do, go through application process all over again.

Just Me

  • Administrator
  • ~ Platinum ~
  • ****
  • Posts: 14234
  • People helped 1051
  • Nice Administrator
Re: Filing for DAC soon in few months when we retire
« Reply #11 on: July 16, 2022, 05:29:24 pm »
A application for DAC had to be made. He lives in a home for the mentally retarded run by a order of Catholic nuns. He did not have to see a SSA doctor. His medical records had the required information.

If your daughters DAC is less than $861 in 2022. SSI can make up the difference for a combined total of $861. When her Medicare kicks in, you will need to apply for Medicaid that helps with Medicare expenses. It is a different form of Medicaid that what she is receiving now.
Nerve damage in upper and lower extremities. Degenerative Disc Disease, RA.

Hope the size of a mustard seed can produce Faith that can move mountains.

AmericanBulldog

  • ~ Copper ~
  • *
  • Posts: 8
  • People helped 0
Re: Filing for DAC soon in few months when we retire
« Reply #12 on: July 16, 2022, 06:10:51 pm »
Gosh, I can only hope ours goes fairly smooth like your brother's and we won't have any hiccups.  After almost 3 years of this pandemic, I am in no mood to "dance" with any government agency. 

Her DAC benefit will definitely be more.  We will just have to see how it goes once the application is in.  I definitely feel the charting in her medical record at her PCPs office could be much much better so that will be some of my focus at her yearly physical in October.  I don't know how her doctor can put it differently than just "autistic", but she does need to do that in her medical record and explain this better I think. 

We will see what happens!  Thank you!