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Author Topic: My story  (Read 19767 times)

jimmyj

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Re: My story
« Reply #45 on: August 20, 2014, 02:34:46 pm »
The disability that they receive in Canada is not the same as SSDI received through the United States Social Security Admininstration.
yes that what he was saying but I also hear in the usa that they retrain you?

Bigfish5

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Re: My story
« Reply #46 on: August 20, 2014, 02:42:08 pm »
The disability that they receive in Canada is not the same as SSDI received through the United States Social Security Admininstration.
yes that what he was saying but I also hear in the usa that they retrain you?

I think you might be thinking of workers comp.  I knew a couple of guys who they paid to go to college to learn how to do a less physically demanding job.  SSA doesn't work that way, if they don't think you're totally disabled you get nothing.

jimmyj

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Re: My story
« Reply #47 on: August 20, 2014, 02:55:11 pm »
The disability that they receive in Canada is not the same as SSDI received through the United States Social Security Admininstration.
yes that what he was saying but I also hear in the usa that they retrain you?

I think you might be thinking of workers comp.  I knew a couple of guys who they paid to go to college to learn how to do a less physically demanding job.  SSA doesn't work that way, if they don't think you're totally disabled you get nothing.
Oh ok I get it now..

concerned

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Re: My story
« Reply #48 on: August 22, 2014, 02:19:32 am »
Yes, Jimmy, what u want to do is show records about your medical problems along with doctors reports going back as far as u can because even though u had worked for most of that time it still shows the problem u have had to endure all that time and hao it has now become to much for u at this time......Concerned

jimmyj

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Re: My story
« Reply #49 on: August 22, 2014, 06:53:17 am »
thanks concerned .
Yes hopefully when they go through my medical records they see how it has progressed, and things seemed to really got bad for
me after me after my last hospital stay when I got a foot ulcer and the infection almost killed me , it like someone kicked a bees
nest , and 3 months later I am back in the hospital with this thing called charcot arthropathy like what the hell is that? how the heck
did I get this this ? well from what I have read its from sever  nerve damage  which makes sense to me because I have so much
problems with my feet . it all ads up I guess .
I never thought I would be Appling for disability as many on here can relate as well , let alone keeping track of my medical records
all I can say is I wish I knew then what I know now. I can only hope when they look at my medical records they see whats been
going on. whatever they need I will try and give them whatever they ask I will try and answer its about all I can do .

so diabetics out there who don't have feeling in there feet and legs , if you ever feel some pop and feel pins and needles run up your
leg ? get to the foot doctor asap ! I can only hope this information helps someone. because if not caught early you may just lose your
leg !
anyways sorry to ramble

franksinotruh

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Re: My story
« Reply #50 on: August 22, 2014, 07:52:57 am »
Jimmy I hear ya bro I have neuropathy in both my feet and lower legs it aint pretty my feet are always tingling and burning even when Im barefooted it feels like I have socks on them and whenever I walk for a while I get a pain I can only describe as it feels like a tube full of molten lava running from my toes to my arches .  and because of loss of sensation I have balance issues , take care of yourself and thanks for alerting others of what can happen because of diabetic complications.
Franksinhotruh

jimmyj

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Re: My story
« Reply #51 on: August 22, 2014, 08:16:26 am »
Jimmy I hear ya bro I have neuropathy in both my feet and lower legs it aint pretty my feet are always tingling and burning even when Im barefooted it feels like I have socks on them and whenever I walk for a while I get a pain I can only describe as it feels like a tube full of molten lava running from my toes to my arches .  and because of loss of sensation I have balance issues , take care of yourself and thanks for alerting others of what can happen because of diabetic complications.
No problem frank ! I never heard of charcot thing , mine started as bad stabbing years ago where I would describe it as someone had a voodoo doll of me and was poking me with needles and people look at you when you flinch and go ouch ! lol
I don't get a whole bunch of that anymore maybe the lyrica is taking care of that , but for me I would describe it as standing on hot coals not walking on them standing on them . and it feels like my feet are swimming in my skin like my skin is to big for my foot , its very odd feeling . and I couldn't tell you how many times I was in the shower and looked down and see socks on my feet
do you find yourself tripping ? like there is a high spot on the floor ?
never walk barefoot man! never never never ! you may step on something and not even know it until it gets infected then the real trouble starts ..

franksinotruh

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Re: My story
« Reply #52 on: August 22, 2014, 08:42:08 am »
oh man I always wear shoes and yes I do trip stumble and walk  like I'm drunk and I hear ya about gettin' a jolt of pain around people and goin SONOFABITCH and those people lookin; at you like you just escaped from the asylum
Franksinhotruh

jimmyj

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Re: My story
« Reply #53 on: August 22, 2014, 08:52:30 am »
oh man I always wear shoes and yes I do trip stumble and walk  like I'm drunk and I hear ya about gettin' a jolt of pain around people and goin SONOFABITCH and those people lookin; at you like you just escaped from the asylum
Hahaha you hit the nail right on the head !

concerned

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Re: My story
« Reply #54 on: August 22, 2014, 09:43:59 am »
Frank and Jimmy, I hear u guys, I have bad neuropathy in my feet and legs! When I am off of them for like a nights sleep, the burning sort of calms down and usually, I am good for about 3 hours on them until the burning comes back and will be there for the rest of the day! I then have to get off of them and walk intermentently, so it doesn't become too intense! If I am on them, say on a day that I am unable to avoid it, in my heals, it feels like I am standing on spikes,like railroad spikes, it is bad!
      Jimmy,I don't know how that charcot foot happened? U must have, been on ur feet for a lot of years, too much, in ur job,etc., etc. I wonder how I avoided that one so far,u too Frank, we must have been lucky so far to avoid that,not that ours is not bad, but,Jimmy's is really messed up, man!
       Lately my arms, started bothering me a lot, so my doc. added topamax to the gabapentin that I take, it took about 6 days before my hands stopped trembling, like, a 90 year olds, but, now it seems to be helping some! Maybe after a while that will get better!
       Jimmy, I hate to say this, but, it seems pa. is tough for people applying for things rite now! Do, u hav e any family that can help u over the hump,because, with your problems, I don't really know, what kind of work u can do? Does ur job have something for u to do where u can sit down or can u even do sit down and does ur blood sugars go up and down, this can take a toll on ur emotions and make it hard to deal with people, not exactly the best for customer service? lol I would say, u should have a chance a ssdi!!  Best of luck to u Jimmy!! Talk to u guys, later.....Concerned

concerned

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Re: My story
« Reply #55 on: August 22, 2014, 09:45:58 am »
Best of luck to u also, Frank!.....Concerned

jimmyj

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Re: My story
« Reply #56 on: August 22, 2014, 12:32:59 pm »
Frank and Jimmy, I hear u guys, I have bad neuropathy in my feet and legs! When I am off of them for like a nights sleep, the burning sort of calms down and usually, I am good for about 3 hours on them until the burning comes back and will be there for the rest of the day! I then have to get off of them and walk intermentently, so it doesn't become too intense! If I am on them, say on a day that I am unable to avoid it, in my heals, it feels like I am standing on spikes,like railroad spikes, it is bad!
      Jimmy,I don't know how that charcot foot happened? U must have, been on ur feet for a lot of years, too much, in ur job,etc., etc. I wonder how I avoided that one so far,u too Frank, we must have been lucky so far to avoid that,not that ours is not bad, but,Jimmy's is really messed up, man!
       Lately my arms, started bothering me a lot, so my doc. added topamax to the gabapentin that I take, it took about 6 days before my hands stopped trembling, like, a 90 year olds, but, now it seems to be helping some! Maybe after a while that will get better!
       Jimmy, I hate to say this, but, it seems pa. is tough for people applying for things rite now! Do, u hav e any family that can help u over the hump,because, with your problems, I don't really know, what kind of work u can do? Does ur job have something for u to do where u can sit down or can u even do sit down and does ur blood sugars go up and down, this can take a toll on ur emotions and make it hard to deal with people, not exactly the best for customer service? lol I would say, u should have a chance a ssdi!!  Best of luck to u Jimmy!! Talk to u guys, later.....Concerned
here is some good reading for the peeps with neuropathy >>

Millions of Americans have diabetes. Few of them are aware of a potential complication called Charcot foot. While current research estimates that approximately one percent of diabetics contract Charcot foot, the number of incidences continues to rise. As the number of people with diabetes increases, and the American population ages, physicians expect this once rare disease to become more common.

Many diabetics suffer with complications of diabetes that affect their feet. Charcot disease affects diabetics, usually without them even realizing they have this disease. It happens when the bones in the foot suddenly become soft. It is usually caused by nerve damage to the foot, or severe neuropathy.

Charcot foot can cause a host of problems. A few of the complications of Charcot foot include easily getting foot fractures, having ulcers, collapse of their foot arches, developing a deformed foot, needing to have the foot amputated, or even death. Some people are unable to walk on their foot when suffering with complication from diabetes.

While you cannot reverse the damage caused by Charcot foot, the destruction that it causes can be stopped with proper medical treatment.

Every diabetic should be aware of the symptoms and seek immediate medical care if they suspect they may have Charcot foot disease. It is particularly important since most people who have diabetes do loose the ability to sense changes in their foot.

Symptoms of Charcot foot can appear overnight. Some of the symptoms include:
One foot feels warmer than the other and is warm to the touch
Redness in the foot
Pain or soreness in the foot
Swelling of the foot

If you have any of these symptoms, please seek immediate medical attention. These symptoms could indicate Charcot foot, or other medical problems that necessitate immediate medical care as well.


I don't wana scare you guys , you may never get it hopefully not ! but its something to keep your eye on that's for sure , I never knew of this either sadly until we get things like this it opens our eyes ..
it seems like your guys symptom's are a little different from mine mine started out like the stabbing and they still do it but its calmed down and I think lyrica helped with that .wait till you get the extreme burning it doesn't give you any breaks laying down ,standing up, its there and it will keep you up during the night ! and I wont lie it has brought me to tears ! and I say this is how my life is gona be !
I was on gabapentin 300 3 times a day and it really messed with me for sure. but I am glad to hear its working for you. I haven't tried Topamax my cousin was on it and it played with her , and check this out , they say you can lose weight on it so my wife was trying it as she would do anything to lose weight and is driving me nuts with this issue ,but anyways when she took it for a few days she started getting stabbing pains in her feet lol and it was so bad she ditched them so I guess it works backwards with people without nerve damage very strange .
sorry to hear about your arms ! and hope that new thing works for you! you don't need that concerned! the feet are enough to deal with !
luckly my wifes dad is there when we really need him if it wasn't for him I wouldn't be here typing this because the only thing we could afford would be mortgage and food , when I applied to welfair they took my wifes pay checks and it says before taxes . not after taxes she brings home 1400 bucks a month kinda hard to pay anything .so when they look at all our bills they should see that we are in the negative after taxes ,
I worked my life on my feet auto mechanic , that would explain the back issues I have also ,leaning over cars for years .
and I was a machine operator and on my feet also , lifting carrying , fork lifts etc , if I could manage to do lite work there ,they wouldn't let me back in anyways . I have this big plastic boot I have to wear all the time , and of course its my right foot so I don't drive , and even if I could drive I take so many medications I would be thrown in jail if I was caught lol and really I don't wana hurt anyone because of my judgment impairment. there was a crane operator in phila who knocked down a building in phila who killed a few people well he was on Percocet and they are gona put it too him..

I am messed up for sure , but as the same I see some peoples list and go wow thank god I don't have that!
this is a tough site because you see what people are going through ,but as the same its a great site to vent about it and learn what is coming , its good to know what to expect instead of things showing up at your door and going what the well is this !!!
 

franksinotruh

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Re: My story
« Reply #57 on: August 22, 2014, 02:27:34 pm »
I'm on gabapentin 300mg 3 times a day also it helps but it still makes me mush headed not as bad as when I started but mush headed all the same I get my medication through the VA I've mentioned Lyrica to my PCP but she seems to be in love with Gabapentin just remember keep everything documented make sure all your medical records get to ODAR and remember  the ALJ is most interested in your ability or lack of ability to FUNCTION
Franksinhotruh

concerned

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Re: My story
« Reply #58 on: August 22, 2014, 08:43:01 pm »
Hey, Frankie, 3oomg/3/day, try 800mg/3/day,I got u beat there dude! What a thing to brag about, huh? I'll put my medications against anyone! lol Try morphine sulfate 100mg/2/day plus fentanyol patches 100 micrograms, 1 every two days, just for the narcotics! With those alone, what company would hire me, I can't do physical work, can't sit because of neck and back problems, and if I were to work in some kind of customer service, I would bite someone's head off!
     Some days r better than others but compared to what? I did work a little, but, here is what I did,2/ 2.5 hr shifts. I vacum 4 small carpets in a vestabule,empty 2 garbage cans about 15lbs., then outside with a dustpan(called a buttler) and a small broom sweep up the lot,just the bigger pieces of garbage!
      A person who wasn't on disability, would probably be able to do this job in 45 minutes. When I was reviewed, my employer said they would write a letter or talk to a representative, but it wasn't necessary. After we went bankrupt, and have moved in with my Dad, which is cool, because he has a whole apartment to himself, my wife and I,have an apartment, this job will not be needed anymore and I am leaving. It seems that even though I probably could continue to do this as long as able, it's really not worth it! I don't make much and when the next review comes up,I will automatically get the long form, even though after they see how much it is for probably laugh and say, ok, renew it!! lol But it is a hastle worrying about it everytime it will come up. Eventually, I probably won't even be able to do it anyway!!
      Frank and Jimmy, U guys, probably,as well as,many others, who r awaiting a decision on benefits, I know the wait is tough, and going to all the docs. appointments is tough and I have even seen some people say on here I'm not taking this or that, well, taking what is prescribed is necessary! It takes time, and even then, some will not win benefits, but,Jimmy and Frank, I think, knowing a lot about diabetes, if u r persistent, u will have a good chance, it may take time! Hang in there guys!!......Concerned

concerned

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Re: My story
« Reply #59 on: August 22, 2014, 09:21:59 pm »
Hey Jimmy, I must say,after I finally found information about u on posts(prior to this I mostly only saw little bits of what u had to say) and I have major feet problems, but, I would have to say,without seeing them of course,that your feet r worse than mine!!
      Now, Worse is a relative term here Jimmy! Probably a reason, mine a better perhaps, is I have been able to rest them! Here's the thing, if u actually have what u say u have dude,and I support u 100% man, then proving disability, should not be hard, time- consuming, maybe, hard-no!!
      Jimmy, U WORKED A LONG TIME right?.......Good Luck.......Concerned