Questions about how to use the forum?

Visit our new Frequently Asked Questions (FAQs) section.

Welcome, Guest. Please login or register.
Did you miss your activation email?

September 29, 2022, 01:54:03 am

Login with username, password and session length

Recent

Members
Stats
  • Total Posts: 246146
  • Total Topics: 24580
  • Online Today: 172
  • Online Ever: 1127
  • (January 16, 2020, 04:17:02 pm)
Users Online
Users: 0
Guests: 112
Total: 112

You are no longer alone ...

Author Topic: Mental Health Treatment: Thoughts, Ideas, Suggestions....  (Read 2674 times)

cdrworrywort

  • ~ Platinum ~
  • *
  • Posts: 243
  • People helped 253
  • Eye am a CDR survivor! Eye am a MINE UNKNOWN!
Mental Health Treatment: Thoughts, Ideas, Suggestions....
« on: June 11, 2020, 07:08:54 am »
Hi Everyone,

I was inspired by a topic post by forum member Ldydrgnkpr, to write about mental health treatments.

So here is my question for everyone to answer and share about, regarding mental health treatments:

* What are your overall thoughts regarding mental health treatments?
* What has worked for you for mental health treatment?
* What difficulties/setbacks have you had with mental health treatment?
* What would you recommend and/or advise for others regarding mental health treatment?

Any thoughts, ideas, suggestions would be of help to members in this disability forum with their mental health struggles.....

Thanks for posting! (and to everyone that posts a reply will get a 'people helped' point from me too)

Cdrworrywort

ps. I will post too, after I think about   the answers to these questions about mental health treatments that I asked....
My Case: 10+yrs SSI, 7 Cond, w/Rep Payee, Initial (3 mths), CDR 1 (long, 6 mths), CDR 2 (short + long, 18+ mths, still in QR)
I believe it is my 'personal mission' to help truly disabled people with their CDR process and beyond..May we all win against the SSA, and not suffer anymore!"~Cdrworrywort~

Lockdown2020

  • ~ Titanium ~
  • *
  • Posts: 169
  • People helped 26
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #1 on: June 11, 2020, 08:00:56 am »
.
« Last Edit: January 12, 2021, 10:08:03 pm by Lockdown2020 »

cdrworrywort

  • ~ Platinum ~
  • *
  • Posts: 243
  • People helped 253
  • Eye am a CDR survivor! Eye am a MINE UNKNOWN!
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #2 on: June 11, 2020, 08:52:17 am »
Hi Everyone,

Lockdown2020- Thank you for your reply and your honest feedback regarding your mental
health treatment thoughts, which I have given you a people helped point for, as promised.

I think that you have expressed thoughts as to what most disabled who have been on disability for many years and have not been helped by treatment.

It then thus becomes a "going through the motions" ordeal, for this particular 'experienced' disability population...

However, I don't see it as a completely bad thing as:

Lockdown2020 gets satisfaction that he/she has filled the paperwork to their satisfaction and hope that it will not be triggered into long form (I highly doubt it with a L0023 score and no other triggering issues). This in turn makes Lockdown2020 happier mentally.....

Lockdown2020's medical provider gets paid for their services to Lockdown2020, even though it is might not be helping him/her. This being paid makes Lockdown2020's medical providers happier...

The SSA gets to process Lockdown2020's CDR short form through the machine, properly and quickly as Lockdown2020 has written about their recent medical treatments. This saves the SSA money by processing only a $50 short form which makes the SSA happy.

The bottom line: Everyone is happy in Lockdown2020's mental health treatment plan.....And if this works for you at your advanced age and advanced experience, then why not?

Focus on retirement next....Whereby sooner than later you can put CDRs behind you for good...Which will make you even more happier....

Hope this helps. Thanks for posting! Keep up the good work posting everyone!

Cdrworrywort
My Case: 10+yrs SSI, 7 Cond, w/Rep Payee, Initial (3 mths), CDR 1 (long, 6 mths), CDR 2 (short + long, 18+ mths, still in QR)
I believe it is my 'personal mission' to help truly disabled people with their CDR process and beyond..May we all win against the SSA, and not suffer anymore!"~Cdrworrywort~

PicoBoulevard

  • ~ Gold ~
  • *
  • Posts: 130
  • People helped 44
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #3 on: June 11, 2020, 09:41:45 am »
I see a psychiatrist once a week.  My medications are an ongoing problem.  I have been placed on five different antipsychotics at the highest dosage and none have stopped or effectively controlled my symptoms.  Despite this, I continue to take the last prescribed anti-psychotic because my doctor says I'd be even worse and suicidal if I stopped taking it. 
I wish I could also see my former psychotherapist but he now practices 100 miles away and I couldn't afford him anyway.  He was very accepting and kind.  In my case, Medicare does not cover extended long-term psychology treatments. 
As the senior members of this forum have pointed out many times, I believe it is important to see a mental health practitioner regularly.  If you are dissatisfied with your treatment or uncomfortable with the doctor's behavior, make an appointment with another doctor.
In a best case scenario, see a psychiatrist and a psychologist if you have the financial ability. 

newdawn

  • Global Moderator
  • ~ Platinum ~
  • ****
  • Posts: 3860
  • People helped 516
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #4 on: June 11, 2020, 11:18:03 am »
I wish I could also see my former psychotherapist but he now practices 100 miles away and I couldn't afford him anyway.  He was very accepting and kind.  In my case, Medicare does not cover extended long-term psychology treatments.

I've never heard of Medicare not covering long-term psychology appointments, so that's interesting to hear they haven't covered it in your case. I've been seeing my psychologist every week for years and she has accepted Medicare (traditional Parts A&B) and has been billing medicare for these weekly sessions since at least 2017. I pay around $18 for my 20% of each session since my high deductible medicare supplemental plan never kicks in because I have yet to reach the OOP deductible in a single year.

Sometimes I wonder if medicare makes her submit something justifying our ongoing appointments from time to time but that's because I have this weird fear that medicare is going to stop covering our sessions. I also used to get strange fears that she was going to get pregnant and have more children and go on maternity leave or even move out of the area. I eventually brought up the fears about her having more children or moving and she assured me she's done having children and is not planning to move anytime soon. I found this comforting/reassuring and no longer worry about those things now. I think I may have even brought up the medicare worry too once but I think she brushed it off somehow.
Location: IL
Age at Application: 31
Disability: Depression, anxiety
Applied: 11/2013
First Denial: 03/2014
Reconsideration Denial: 11/2014
Hearing: 11/13/15 (Friday the 13th!)
ALJ Approval: 01/15/16 Fully Favorable
Back Pay: 02/13/16
Award Letter: 02/17/16
1st monthly benefit: 03/21/16

cdrworrywort

  • ~ Platinum ~
  • *
  • Posts: 243
  • People helped 253
  • Eye am a CDR survivor! Eye am a MINE UNKNOWN!
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #5 on: June 11, 2020, 11:45:27 am »
 Hi Everyone,

PicoBoulevard- Thank you for your reply and your honest feedback regarding your mental
health treatment thoughts, which I have given you a people helped point for, as promised.

I think that it is good that you are able to see your psychiatrist once a  week and have a good relationship with them for your mental health needs.

In your case though, being on such high dosages of several psych medications, have caused side effects for you and/or your body has become so used to them that it has caused them to be essentially ineffective anymore?

Have you spoken to your doctor about your medication concerns?

Despite what the doctor says, do YOU think the medications are helping you?

Are there any other underlying health issues and life issues that make the medications more or less tolerable?

For example, if you have an underlying physical health condition (high blood pressure, diabetes, etc) that makes absorbing meds for your body difficult?

Or for example, if you have another life stresser that is affecting you more so that cannot be helped with meds (financal stresses, life chaning events, etc.)?

Or has your body has just built ip a maximum tolerance level to the medication and won't react either way to it.

Lol...remind me of another patient guy that I met in the hospital. He was a bug guy, 6 foot 8 inches or so...He was on a lot of psych medications and high doses at the same time, because his body was bigger and the meds were not having an effect on him. The psychiatrist there after about 3 weeks or so finally figured out what the problem was, but yeah, he was a human test dummy for psych meds until they figured out the problem...

I on the other hand, was the smallest patient there, and had the reverse problems in tolerating meds...The meds gave me side effects sooner than expected...

Needless to say, we all had a laugh of the situation...

But yeah, everyone has different tolerance to medications and what might or might not work for one person might or might not work for another person.

It is too bad that you can't see the former psychotherapist that you saw before that you liked and trusted.

But perhaps you can find someone similar to them, personality wise that you can eventually see too?

I agree with what you said: " If you are dissatisfied with your treatment or uncomfortable with the doctor's behavior, make an appointment with another doctor."

And hopefully too, you are able to see another doctor that is a good fit for you and good luck with your medication medical treatments too.

Hope this helps. Thanks for posting! Keep up the good work posting everyone!

Cdrworrywort
« Last Edit: June 11, 2020, 11:53:03 am by cdrworrywort »
My Case: 10+yrs SSI, 7 Cond, w/Rep Payee, Initial (3 mths), CDR 1 (long, 6 mths), CDR 2 (short + long, 18+ mths, still in QR)
I believe it is my 'personal mission' to help truly disabled people with their CDR process and beyond..May we all win against the SSA, and not suffer anymore!"~Cdrworrywort~

cdrworrywort

  • ~ Platinum ~
  • *
  • Posts: 243
  • People helped 253
  • Eye am a CDR survivor! Eye am a MINE UNKNOWN!
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #6 on: June 11, 2020, 12:42:24 pm »
Hi Everyone,

Newdawn- Thank you for your reply and your honest feedback regarding your mental
health treatment thoughts, which I have given you a people helped point for, as promised.

I honestly don't know about medicare as I don't have such, but I do know that you paying only $18 copayment per therapy session sounds like a good deal that you got there for medical your situation.

For medicaid, there are limits to therapy visits, which only covers 20 visits per calendar year maximum. It may be free, but with time limits like that it is fairly difficult to reach mental health goals properly.

Furthermore, there are more
limits, rules, and restrictions with medicaid that make those that have it nearly impossible to obtain proper treatment from it.

Barely any medical providers accept medicaid, and to those that do, the sessions are limited, brief, and are usually from providers with little mental health training...

Yes, there is a lot of bureaucratic paperwork with medicaid and medicare, which providers are reluctant to do too, and get less pay for in comparison to private insurance and other payment options.

As for your particular situation, Newdawn, I honestly don't think your mental health provider will leave you anytime soon, be it that what I sense is that they have a good relationship with you and enjoys the work that she is doing.

And when a woman says after they had kids, and that they don't want any more kids, then more likely than not they actually mean it, as to balance work and kids is a difficult endeavor for any woman, let alone a woman with a job such as a therapist that is very mentally demanding...

But let's just say that for whatever reason she has to leave and/or stop working.

Maybe you and her can come up with some kind of transition plan as to make sure that your mental health care is coordinated properly.

For example, you and her and the new person meet together and coordinate before the change will occur if there is time to do such.

Think of any new person as an extension of her, especially too if it is a person that she personally picked out.

After all, if she did truly care about her patients, she wouldn't just leave them to anyone not trustworthy enough, especially with something as important as mental health information.

Hope this helps. Thanks for posting! Keep up the good work posting everyone!

Cdrworrywort
My Case: 10+yrs SSI, 7 Cond, w/Rep Payee, Initial (3 mths), CDR 1 (long, 6 mths), CDR 2 (short + long, 18+ mths, still in QR)
I believe it is my 'personal mission' to help truly disabled people with their CDR process and beyond..May we all win against the SSA, and not suffer anymore!"~Cdrworrywort~

PicoBoulevard

  • ~ Gold ~
  • *
  • Posts: 130
  • People helped 44
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #7 on: June 11, 2020, 02:44:52 pm »
In your case though, being on such high dosages of several psych medications, have caused side effects for you and/or your body has become so used to them that it has caused them to be essentially ineffective anymore?

Have you spoken to your doctor about your medication concerns?

Despite what the doctor says, do YOU think the medications are helping you?



Thankfully, so far no bad side effects like tardive dyskinesia (uncontrollable movements).  If that happened, I would have to stop the meds abruptly. 

The psych meds just aren't effective.  We've tried various medications at different doses and they just don't work.  I believe my doctor that I'd be worse off without them because before I was medicated years ago, I was homeless, hospitalized, out of control, and had attempted suicide several times. 

I hope that someday a new antipsychotic will be released that is much more effective than the ones I've tried. 

Thank you for caring. 

Lockdown2020

  • ~ Titanium ~
  • *
  • Posts: 169
  • People helped 26
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #8 on: June 11, 2020, 04:21:20 pm »
.
« Last Edit: January 12, 2021, 10:08:42 pm by Lockdown2020 »

Just Me

  • Administrator
  • ~ Platinum ~
  • ****
  • Posts: 14234
  • People helped 1051
  • Nice Administrator
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #9 on: June 11, 2020, 07:14:19 pm »
A current/previous doctor does not tell a new doctor how to treat a patient. Each doctor is medically and legally responsible for each patient they treat. Occasionally a current doctor might recommend a doctor they know prescribes the same medication for a condition they do. But they cannot tell a new doctor what to prescribe or how to treat a patient. Some doctors are more agreeable to continuing previous medications and treatments than other doctors. But that is no guarantee a new doctor will prescribe and treat a patient like the previous doctor did. Occasionally a doctor might recommend a new doctor that has a personality a patient is more likely to respond to, but it doesn't happen often. Usually a doctor recommends another doctor that is opening up a practice or joining a,practice. In other words, it has nothing to do with the new doctor prescribing and/or treating the patient like they did.
Nerve damage in upper and lower extremities. Degenerative Disc Disease, RA.

Hope the size of a mustard seed can produce Faith that can move mountains.

cdrworrywort

  • ~ Platinum ~
  • *
  • Posts: 243
  • People helped 253
  • Eye am a CDR survivor! Eye am a MINE UNKNOWN!
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #10 on: June 15, 2020, 07:31:44 am »
Hi Everyone,

PicoBoulevard- You are very lucky to nt have had any bad side effects from your medications.

I think it is because your body has built up a big enough tolerance level to such, so it does nothing that you are aware of as making a big difference but it is making little differences by keeping you stable.

Maybe by not having a negative reaction to such and keeping your conditions stable is all you can expect.

Hey, if it works for you, then see it as positive. And see it as if your meds help you stay out of the hospital and to not be homeless then see that as a positive in your life too. So the meds are working after all...

New meds and therapies are always being introduced, true. But they are always built from the original ingredients for meds and/or original ideas for therapies.

If you are ok with the original med ingredients and original therapy ideas, and wanting to build off of that, then that is ok to use new meds and therapies to continue to better your health with.

Me on the other hand am allergic and have really bad side effects to certain psych meds (and almost died from such....spent a week in the hospital hanging on for life....) and have had bad experiences with therapies....So really nothing new can work on me.....The doctors know this, the therapists know this...

And yet the SSA seems unconvinced despite the medical evidence for my case indicating such....Maybe that is why they want to pick on my CDR case? They want to study as to why meds and treatments don't work for me...

Nevertheless, if you and others find what works med wise and therapy wise that is great and are open to new ideas for medical care...And I am happy to hear about this...

And I wish you and everyone else good health and success in your medications and therapy treatments.

Hope this helps. Thanks again for posting! (Here is another people helped point for you too)...

Cdrworrywort
My Case: 10+yrs SSI, 7 Cond, w/Rep Payee, Initial (3 mths), CDR 1 (long, 6 mths), CDR 2 (short + long, 18+ mths, still in QR)
I believe it is my 'personal mission' to help truly disabled people with their CDR process and beyond..May we all win against the SSA, and not suffer anymore!"~Cdrworrywort~

cdrworrywort

  • ~ Platinum ~
  • *
  • Posts: 243
  • People helped 253
  • Eye am a CDR survivor! Eye am a MINE UNKNOWN!
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #11 on: June 15, 2020, 08:25:54 am »
Hi Everyone,

Lockdown1020- That is a good idea that your psychologist wants you to write down your goals and objectives.

Not so for just billing purposes, but rather for you to "see" and "visualize" your own goals and what you want to accomplish for treatment and to see what works and what doesn't work and to fine tune that...

The goals and objectives that you have seem reasonable, and something you can accomplish in a reasonable amount of time, ao hopefully that will give you a sense of achievement in life.

As long as it is something that you and your psychologist agree on the goals together and can work together with it, that is good to better your life with.

Now if your goal was to get back to work at SGA levels, on a 40hr work week, then that would be of concern to the SSA.

But if your goal was a lot more smaller than that and/or had nothing to do with work, you should see it as personal improvement and not much more than that in terms of keeping your disability benefits.

My goal: Lol....remember to write down a goal, and then try to remember where I put the piece of paper that I wrote my goal on....as there are days where my memory just doesn't work anymore...

Hope this helps. And good luck with your life goals too, no matter how small or big they may be...

(here is an extra people helped point for you too, to help you be motivated towards your goals too)

Cdrworrywort
My Case: 10+yrs SSI, 7 Cond, w/Rep Payee, Initial (3 mths), CDR 1 (long, 6 mths), CDR 2 (short + long, 18+ mths, still in QR)
I believe it is my 'personal mission' to help truly disabled people with their CDR process and beyond..May we all win against the SSA, and not suffer anymore!"~Cdrworrywort~

cdrworrywort

  • ~ Platinum ~
  • *
  • Posts: 243
  • People helped 253
  • Eye am a CDR survivor! Eye am a MINE UNKNOWN!
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #12 on: June 15, 2020, 09:00:25 am »
Hi Everyone,

JustMe (ans Newdawn) - I wasn't exactly sure who you were replying to here, so I assume that based on what you were replying to was Newdawn's post on reply #4 unless told otherwise.

But I would like to give some insight on this post as it does bring up some interesting points.....

True, that each doctor/medical provider is different, and if they do leave the practice that their successors would be different too. As no two people are alike in any way in life...

However, a doctor/medical provider is more likely to leave medical records and patients/clients to someone that they trust, so at least there is some "connection" from the past to the present/future doctor/medical provider.

A new doctor/medical provider might not be a total match personality wise, but at least they shouldn't leave you hanging with no medical providers if someone left (lol...and that would be illegal actually).

Worse case scenario one can seek medical care elsewhere...

But yeah, knowing that if a person had at least one good medical provider at some point in their life, that should be a blessing and looked at positively...

Me on the other hand, haven't had that good luck....(close calls though)....but hey, maybe I am destined to have bad luck in life, especially with medical care...

Cdrworrywort
My Case: 10+yrs SSI, 7 Cond, w/Rep Payee, Initial (3 mths), CDR 1 (long, 6 mths), CDR 2 (short + long, 18+ mths, still in QR)
I believe it is my 'personal mission' to help truly disabled people with their CDR process and beyond..May we all win against the SSA, and not suffer anymore!"~Cdrworrywort~

Just Me

  • Administrator
  • ~ Platinum ~
  • ****
  • Posts: 14234
  • People helped 1051
  • Nice Administrator
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #13 on: June 15, 2020, 09:50:54 am »
Hi Everyone,

JustMe (ans Newdawn) - I wasn't exactly sure who you were replying to here, so I assume that based on what you were replying to was Newdawn's post on reply #4 unless told otherwise.

But I would like to give some insight on this post as it does bring up some interesting points.....

True, that each doctor/medical provider is different, and if they do leave the practice that their successors would be different too. As no two people are alike in any way in life...

However, a doctor/medical provider is more likely to leave medical records and patients/clients to someone that they trust, so at least there is some "connection" from the past to the present/future doctor/medical provider.

A new doctor/medical provider might not be a total match personality wise, but at least they shouldn't leave you hanging with no medical providers if someone left (lol...and that would be illegal actually).

Worse case scenario one can seek medical care elsewhere...

But yeah, knowing that if a person had at least one good medical provider at some point in their life, that should be a blessing and looked at positively...

Me on the other hand, haven't had that good luck....(close calls though)....but hey, maybe I am destined to have bad luck in life, especially with medical care...

Cdrworrywort

When a doctor is in a solo practice. Their patients medical records belong to them. When a,doctor is in practice with someone else, clinic, hospital, etc. Their patients medical records belong to the practice, clinic, hospital. The doctor cannot take a copy of their patients medical records with them. Unless the patient signs,a,release form. Even then, the doctor only gets a copy. Patients medical records stay at the practice, clinic, hospital, etc. So it has nothing to do with trusting their colleagues.
Nerve damage in upper and lower extremities. Degenerative Disc Disease, RA.

Hope the size of a mustard seed can produce Faith that can move mountains.

cdrworrywort

  • ~ Platinum ~
  • *
  • Posts: 243
  • People helped 253
  • Eye am a CDR survivor! Eye am a MINE UNKNOWN!
Re: Mental Health Treatment: Thoughts, Ideas, Suggestions....
« Reply #14 on: June 15, 2020, 11:38:04 am »
Hi Everyone,

I almost forgot to answer my own questions...lol...

But here are my answers, which I will post here for everyone to read about:

* What are your overall thoughts regarding mental health treatments?
Cdrworrywort: "In one simple statement: I honestly believe that mental health treatment should be a personalized approach, with each person doing what works best for them. This can be difficult though as there can be personal obstacles to overcome and there is a stigma in society about mental health issues and disability. But if a person finds what works for them, then the should do their best with it and focus on living a healthier life because of such."

* What has worked for you for mental health treatment?
Cdrworrywort: "In all honesty....nothing. I have tried almost everything and anything under the sun. Over many treatments spanning many years with many different medical providers and many hospitalizations and treatments programs...There have been a couple of close calls though, but those were usually short term due to medical restrictions and/or medicaid insurance restrictions. So to say that nothing has worked pretty much says a lot in my case. But hey, maybe I am destined to have bad luck in life, especially with medical care..."

* What difficulties/setbacks have you had with mental health treatment?
Cdrworrywort: "Too many to name here in detail. But I can summarize it with the following main difficulties/setbacks that I have had in for mental health treatment, no matter where I have lived:

Specialists and specialized treatments that are too expensive and/or inaccessible to a person on disability incomes.

Medicaid coverage and lack of providers that accept such.

Medicaid rules and restrictions regarding very limited coverage for mental health issues.

The few providers that do accept medicaid aren't specialized/knowledgeable enough to deal with all of my mental health issues.

Having 7 mental health conditions that nobody wants to or is able to treat such properly.

The effects of my personal 7 mental health conditions that make it a long term patient-provider relationship quite problematic.

My allergic reactions, sensitives, and severe side effects from medications and bad experiences with treatments and therapies.

My daily functioning has becone quite difficult to keep up with medical appointments., even if I could find the perfect medical provider and treatment combination.

* What would you recommend and/or advise for others regarding mental health treatment?
Cdrworrywort: "Each person and their medical providers approaches towards medical treatment is different. There is no right or wrong treatment to take. Each person has their motivations and limitations in life for treatments and each person should find this out for themselves. If a person finds what works for them, then they should do their best with it and focus on living a healthier life because of such."

Hope this helps everyone too.

Keep up the good work posting on this thread too!

Good luck and good health mental health wishes to all!

Cdrworrywort
« Last Edit: June 15, 2020, 11:39:49 am by cdrworrywort »
My Case: 10+yrs SSI, 7 Cond, w/Rep Payee, Initial (3 mths), CDR 1 (long, 6 mths), CDR 2 (short + long, 18+ mths, still in QR)
I believe it is my 'personal mission' to help truly disabled people with their CDR process and beyond..May we all win against the SSA, and not suffer anymore!"~Cdrworrywort~