Ok. I am coming out from the shadows and laying on the table what bothers
me so much about this -- please hear me out because I was one of the ones complaining privately.
OH before I get much further, Happy friggin Memorial Day.
And I do hope the attention this thread and Smith are receiving does some amount of good -- that it is not in vain or some unintentional reward for passive-aggressive behavior designed to stir people up. (P.S. Passive-Aggressive is not in the DSM anymore, I believe, so don't use it.)
There are a lot of people hurting, who visit this board for help. Hurting doesn't even begin to describe it. Destitute and living without hope. And worse than that, living with a sense of BETRAYAL by the world around them, by a system most of us put money, worked to keep going, and believed would be there as a last resort only to find out it may not be available to us after all. Not available soon enough to save us from more disabling features of our diseases or not before death claims us.
I can't know what's going on with other people or anything about their particular situations, Smith's included. But, because the SSDI process is so very difficult to understand, and especially because everyone's unique disabilities and limitations are so very personal, it is very difficult for me to not become very RAW and bruised when another poster takes such a nonchalant attitude about 1) their disabling condition and whether to get treatment for it and 2) what the trifling amount of SSDI benefits might afford him/her over and above unearned income he is already, apparently, receiving.
I say "nonchalant" because I have seen others, and know I myself, have been on this board frequently asking questions and expressing shear horror or panic. Panic over a statistically lengthy wait and what that means personally, financially and medically, and horror for the same reasons but mainly because of how an overly complex, excessively backlogged system feels like an utter Betrayal. Never seeing your American Dream come true is one thing. Being Forgotten and alienated by society as a whole -- that is quite another.
It's very difficult to read some posts (like in this thread) that may in fact be genuine but smack of insincerity and cluelessness. Most of us know just how bad "BAD" can get because we LIVE IT.
When someone is truly disabled and unable to draw any income or benefits whatsoever and can expect to wait two years for help? Try THAT on for size!
I can't expect other's to know what I go through just as I can't know what it's like to walk in other's shoes, for for God's sake TRY!
I am here to tell you that suffering a disabling condition without health care( by no fault or choice of one's own) is one of the most frightening and helpless feelings in the world. Looking at months or years of that possibility is a fate worse than death when you are really sick.
When you need care and treatment, you need it and don't go picking and choosing whether to take your medicine or not. It's NOT an option, but unfortunately and all too often health care in not accessible or affordable for a lot of us.
There are those of us who have already worked through multiple job losses and suffered periods of unemployment due to health and disability only to lose all the rest of our savings, retirement and assets we built up from working 30+ years. We contributed to our communities. I don't think I've gotten a thank you. NO. I am certain I haven't. I do get askance looks when using my parking permit, though. That's the extent of acknowledgement I get these days. Yep.
If it weren't for a large village of friends in another state pulling together to help me this summer, I would be out on the street come July and still might end up there depending on how long a favorable decision on my claim takes.
Living with roommates and it's "not terrible" but somehow not as preferable as a condo? Unless it's a meth or crack house, be grateful.
Try a little disabled/elder abuse on for size. It gets terrible real quick and the underside of an overpass starts looking pretty darned good when your roommates (or family memebers) turn from "not-terrible" to "bat-guano-crazy" and plain ole mean because you have no money and cost THEM too much.
Treatment is optional? Diagnosis is differential, secondary, or not certain? Really? And that's ok? Is that a fact? Wouldn't YOU want to know why you feel so bad and make it stop or at least get a little relief? I know I have with my particular conditions. And, I know there are no doctors willing to touch you when you have no money. Free clinic or not. You will wait.
If it is possible in any way to refrain from hurting oneself or others in the process, I would pray Mr Smith land a job not requiring too much sensitivity to others (mortgage broker or collections comes to mind), put away as much as possible (after doctors' co-pays, medication - oh that's right never mind the meds -- and health insurance) out of each paycheck in an interest bearing portfolio of investments--- then by the time 55 rolls around, he will be a millionaire and can tack on an SSDI benefits amount (if it isn't bankrupted from fraud before that) to those millions in that offshore account.
Millennial B.S. is what it is.

I don't think the original poster realizes that SSDI doesn't last forever, either. What's the average? Five years? That's right. FIVE YEARS and a lot of people are either dropped or otherwise no longer need it. FIVE YEARS won't buy a condo but it will keep those funds out of the pockets of someone else who's living on the street.
Thanks. I'm done.